Mitochondrial Disease Awareness Week: September 19th –...
September 19th - 25th marks the World Mitochondrial Disease Awareness Week where the global mitochondrial disease community come together to raise awareness of...
Thank you to BGL Group for a...
BGL Group recently launched a wonderful initiative called Empower, Pledge, Donate and we are absolutely delighted to confirm we have been awarded a...
Our charity car has arrived!
We are delighted to announce that we finally have our brand new charity car! Fully illustrated with our amazing mito monkeys! This is...
Would you like to be involved with...
As we look for new ways to help raise vital awareness and funds for mitochondrial diseases, we would like to invite people affected...
Watching Coronation Street cover my children’s disease...
Picking up the phone, I dialled the number of a woman I’d found on the internet. I was desperate for some sort of...
From Harry Potter to Ed Sheeran –...
During the current lockdown due to Covid-19, many of our events have been cancelled so we’ve been looking for a variety of ways...
London Marathon Relay Raises Spirits and Funds
Sunday 26th April should have been the 40th London Marathon, but due to the unfortunate global pandemic the race was postponed. We thought...
Are you up for the 2.6 movie...
Looking for ways to beat the lockdown boredom? Looking for something to do with the family, just to entertain yourself, or something to...
London Marathon Relay Run Challenge
Would you like to take part in a unique London Marathon Relay and raise vital funds for some of our children? On Sunday...
Stay at Home, Protect the NHS, Save...
Thanks to our amazing design team, we now have these wonderful colouring sheets to help keep the boredom at bay and spread a...
Charlie Gard Foundation Supports Rainbows for Nightingale
Rainbows for Nightingale ❤️????? NHS Nightingale are looking for pictures of rainbows, and messages of hope, drawn by children to share with patients...
‘When we lost Charlie we wept with...
Charlie Gard’s parents reveal they’re expecting a healthy baby three years after they lost their 11-month-old son in a battle against doctors that...
Our charity firewalk is back for 2020,...
Are you looking for a hot, new challenge in 2020? After the success of our firewalk last year we’ve decided to do it...
Subscribe to our mailing list