Terms and Conditions

The Charlie Gard Foundation operates this website, the home page of which can be found at www.thecharliegardfoundation.org. Your access to and use of this website is subject to your compliance with all applicable laws and these terms of use, which incorporate the paragraphs below and the Privacy Policy, all of which can be accessed from this page. Your use of this website constitutes your consent to accept and comply with the Terms of Use.

Use of this website

This website is offered as an information service for families affected by a mitochondrial diagnosis, or children with life-limiting conditions, and is directed solely at those who access this website from the United Kingdom.

Whilst we use reasonable efforts to include accurate and up-to-date information on this website, errors may occur. We cannot give any warranty or representation as to the accuracy of the information, and do not accept responsibility for errors or omissions or for any action or decisions based on the information. We reserve the right to refuse to post material, or remove already posted material, on the website at any time.

Your use of this website is at your own risk. The information and materials provided on this website are of a general nature only and cannot be regarded as constituting advice or recommendations (professional or otherwise). We do not accept any liability for any direct, indirect, special or consequential losses or damages of whatever nature, including, but not limited to loss of anticipated savings, revenues, information, goodwill or contracts arising out of this website, its availability or lack of availability or your use of any information contained in this website.

We exclude all warranties, express or implied, relating to the information and materials on this website to the fullest extent permitted by law.

If any content on the website appears to be inaccurate, disingenuous, offensive or unlawful please contact us immediately.

Links from and to this website

This website contains hypertext links to third parties’ websites. Any hypertext links between our website and any third party website are provided for your convenience only and we accept no liability whatsoever for the contents of any such third party website. We exclude to the fullest extent permitted by law all liability that may arise in connection with or as a result of third party website material or your accessing of third party websites causing any damage, costs, injury or loss of any kind.

You agree that if you wish to create any links between our website and any other website you will do so only in accordance with the rules set out on this website. Please contact info@thecharliegardfoundation.org if you wish to discuss adding a website link to our site.

International Use

The Charlie Gard Foundation does not promise that materials on the website are appropriate or available for use in locations outside the United Kingdom. Accessing the website from territories where its contents are illegal or unlawful is prohibited. If you choose to access this website from locations not within the United Kingdom, you do so on your own initiative and you will be responsible for compliance with your own local laws.

Applying to The Charlie Gard Foundation for assistance

The Terms and Conditions relates to your use of this website. If you make an application to The Charlie Gard Foundation for assistance, whether online or otherwise, The Charlie Gard Foundation will ask you to agree to be bound by separate terms found on the Apply for Assistance page of this website.

Trade Marks, Logos and Service Marks

The trade marks, logos and service marks displayed on this website (registered or unregistered) are and shall remain the property of The Charlie Gard Foundation. Nothing in these Terms shall be construed as granting any licence or right to use any Trade Mark displayed without the prior written consent from the owner. Your misuse or infringement of any of the Trade Marks displayed on this website is strictly prohibited.


The copyright in each aspect of this website is owned by The Charlie Gard Foundation or its content or technology providers. We, together with our licensors, own and control all the copyright and other intellectual property rights in our website and the material on our website. All content is protected by copyright and may not be used without our prior written consent. We do not warrant or represent that your use of materials displayed on the website will not infringe the rights of third parties.

Except where otherwise stated, you must not copy, adapt, download, exploit, distribute or otherwise use the information contained in the website in any way, other than for the purpose of enquiring about or requesting information relating to the type of goods and services we are able to offer. You may downloading and temporarily store information from the website for the purpose of viewing, for your personal use only, on a personal computer or terminal. For the avoidance of doubt you shall not be entitled to reproduce, permanently store, or retransmit any of the contents of the website without our prior written consent.


Whilst we try to keep our anti-virus software up-to-date we do not warrant that this website, its servers, downloadable files or emails, which may be sent by us, are free from viruses or other harmful components.
You must not:
• introduce or attempt to introduce any virus or other contaminant to the website or any of its software or systems; or
• in any way attempt to access, alter, de-compile, reverse engineer, destroy or otherwise tamper with any part of this website, its software or systems.

Feedback and Complaints

Any queries, feedback or comments you may have about this website should be submitted in writing to The Charlie Gard Foundation, Suite 19, 94 Fulham Palace Road, Hammersmith, W6 9PL.


We reserve the right to update these Terms and Conditions from time to time without notice. Therefore, we encourage you to reread these Terms and Conditions each time you visit the website. If you do not wish to accept new Terms and Conditions, you should not continue to use The Charlie Gard Foundation website. Your use of this website indicates your agreement to be bound by the latest Terms and Conditions.

Privacy Statement

Any personal information collected by The Charlie Gard Foundation from you shall only be used in accordance with our Privacy Statement. A copy of our Privacy Statement can be viewed by clicking here.

Connection and Charges

The Charlie Gard Foundation will not take responsibility for obtaining an appropriate connection with a telecommunications provider in order to access this website. This responsibility lies with you, and the costs of all charges you incur in accessing and using this website is solely your responsibility.


If any of the Terms of Use are unenforceable it shall not affect the enforceability of the rest of them.

The Terms of Use shall be governed by and construed in accordance with English law and the English Courts shall have exclusive jurisdiction to hear disputes between us.

The Charlie Gard Foundation shall not be responsible for any breach of these Terms and Conditions caused by circumstances beyond their control.

A person who is not a party to these Terms and Conditions shall have no right under the Contract (Rights of Third Parties) Act 1999 to enforce any term of these Terms and Conditions but this shall not affect any right or remedy of a third party which exists or is available apart from that Act.

At all times you will comply with all applicable Data Protection Legislation. You will adhere to guidelines within the Data Protection Act 1998 and the General Data Protection Regulation when it comes into force in May 2018.