Who are we?
What is mitochondrial disease?
Mitochondrial disease, or ‘mito’ for short, refers to a group of disorders where dysfunctional mitochondria are present, resulting in a variety of developmental, muscular and brain abnormalities. Mitochondrial disease is a genetic, chronic condition that is sadly progressive and can affect anyone at any time in their life. Symptoms of the disease vary hugely between individuals, but the most common symptoms are fatigue, neurological problems, visual and/or hearing impairment, heart, liver or kidney dysfunction, muscle weakness and poor growth, to name but a few. There are very few treatments for mitochondrial diseases and there is currently no cure.
Did you know?
“1 in 2,000 people will face a diagnosis of mitochondrial disease.”
Did you know?
“The first diagnosis of mitochondrial disease was in 1962, but research only began to take place within the last 20 years.”
Did you know?
“1 in 10 people have a rare disease.”
Did you know?
“Mitochondrial disease can cause symptoms in any organ at any age.”
Did you know?
“Many diseases stem from mitochondria dysfunction, including Alzheimers, Parkinson’s, diabetes and autism.”
Play our Lottery
Be in with a chance of winning £25,000!
Thanks to people like you playing our lottery, we are able to invest more funds into pioneering research, and aim to achieve our goal of one day finding that all elusive cure. Your contributions also go towards our family support, helping to provide a brighter mito future for our families because mito matters.
Charlie's Law
Charlie’s tragic death on 28th July 2017 exposed the limitations of current processes available to parents, doctors and the NHS in efforts to ensure the best outcomes for seriously ill children. Charlie’s fight highlighted an urgent need for changes in the law, policy and legal and health practice to support families, as well as medical and legal professionals involved in what are deeply emotive, difficult and life-changing circumstances.
Charlie’s parents, Connie Yates and Chris Gard, have been working with NHS medical professionals, world-leading ethicists and legal experts to develop draft legislation that will prevent further long and painful conflicts between hospitals and families with sick children.
The bill provides three key changes to improve existing legislation. Charlie’s Law will:
Monkey Adventures!
Raise awareness and show everyone where your Monkey has been on their adventures with our Monkey Map. We’d love to know where in the world are our mito monkeys!
Would you like a Monkey of your own? Visit our shop today!
Upcoming Events
Daniel’s Charity Skydive
Sunday 20th September 2020
On Sunday 20th September 2020 a team of brave individuals will participate in a group skydive to help raise funds for Daniel's and...
Daniel’s Charity Firewalk
Saturday 21st November 2020
On Saturday 21st November we will have a fantastically fiery Firewalk event for you all – pandemic permitting! It's £10 to register and...
G.N.R – Team Charlie 2020
Sunday, 13th September 2020
It's the Great North Run's 40th year anniversary in 2020 and we'll have a team of 40 to run for the foundation in...
Maxwell’s Charity Skydive
Saturday 12th September 2020
On Saturday 12th September 2020 a team of brave individuals will participate in a group skydive to help raise funds for Maxwell's cause....
Maxwell’s Charity Firewalk
14th November 2020
On Saturday 14th November we will have a fantastically fiery Firewalk event for you all – pandemic permitted! It's £10 to register and...
Our Latest News
We’re in with the chance of winning £1000!
A.F. Blakemore & sons have launched their community cash back grants, and we've made the final three for this week and we will...
Thank you to BGL Group for a £10,000 grant!
BGL Group recently launched a wonderful initiative called Empower, Pledge, Donate and we are absolutely delighted to confirm we have been awarded a...
Our charity car has arrived!
We are delighted to announce that we finally have our brand new charity car! Fully illustrated with our amazing mito monkeys! This is...
Would you like to be involved with our charity calendar?
As we look for new ways to help raise vital awareness and funds for mitochondrial diseases, we would like to invite people affected...
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