Mitochondrial Disease Awareness Week
Awareness around the world for mitochondrial disease was spread from September 13-19th 2020 with a variety of social media campaigns, culminating in Light Up for Mito where buildings and landmarks around the world lit up to help spread awareness for this currently incurable disease.
Thanks go to Gateshead Council for lighting the Millennium Bridge for the Charlie Gard Foundation, and Monkeys for popping down and getting some photos!
Thanks also go to Clacton Pier for lighting up in memory of beautiful Florence-Rose who sadly passed away in 2019, and to Clacton and Frinton Gazette for such a lovely write up that can be read here.
Buildings were also lit up across the pond in Ireland in memory of Beibhínn and other mito children Daithí and Oran. Thanks go to the Guildhall, Derry council offices and The Tinnies for lighting up and helping to raise awareness for mitochondrial disease.
Raising awareness for mitochondrial disease doesn’t finish on September 19th for us because on September 26th 2020 we’ll be launching Charlie’s Gifting Week where for one week of the year individuals and families affected by mitochondrial disease can apply for one of our memory making gifts. A small but simple gesture to help us reach out to more families and to spread just a little kindness, especially through these difficult time of the pandemic.