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Latest News
Butterfly Awards
On Saturday 27th October 2018 Connie and Chris attended a very special event called The Butterfly Awards. The inspirational ceremony and dinner brings together the champions and survivors of baby loss, and brings much needed
Mitochondrial Disease Awareness Week
Sunday 16th September 2018 marks the start of Mitochondrial Disease Awareness week, and to celebrate such an important date in the mito calendar we have are proud to launch Charlie’s Gifting Week too.
No other family should be put through our heartbreak
A new law in memory of baby Charlie Gard was laid before Parliament last night in a bid to spare other families courtroom clashes with doctors.