Connie Yates

Co-founder and Chair

After losing my son, Charlie, to a mitochondrial disorder, both myself and my partner decided that more needs to be done to help support families affected by mito. Treatments are limited, research is underfunded, and we found very little support to guide us through the most devastating time of our lives. I don’t want another family to have to go through what we did, and so we decided to launch the Charlie Gard Foundation in memory of our son and ensure that support is available to every family touched by this incurable disease.