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The Sandcastle Trust

The Sandcastle Trust is a small charity with a big vision: a future where a diagnosis of a rare genetic condition will not be a barrier to experiencing everything that life has to offer – most importantly enjoying time together as a family.

The charity provides families who have been affected by a rare genetic condition with grants for short breaks and special family days, providing much-needed fun, respite and the opportunity to create positive family memories.

The Sandcastle Trust is unique in that access to their grants does not stop at age 18 and are available to families who have suffered a bereavement too.

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