“1 in 2,000 people will face a diagnosis of mitochondrial disease.”
How can we help?
The Charlie Gard Foundation works with a variety of charities, and companies, to ensure we can offer as many different levels of professional support as possible. We are very keen to support families in the ‘here and now’ so whatever you may need to help you live a more fulfilling or comfortable life, we aim to provide it for you. From memory making gifts to treatment grants, and fundraising support to specialist equipment – we cover a broad variety of services to help the lives of those families and individuals affected by a mitochondrial diagnosis.
Who can apply?
If you’ve been affected by a mitochondrial diagnosis, or you’re in the process of receiving a diagnosis, then you’re eligible to apply for assistance. We have no restrictions in terms of your age or where you live, and all referrals are reviewed on a case-by-case basis, so if in doubt please do still apply as we’ll do our utmost to assist everyone who reaches out to us for help. All our services are available for residents in the UK and Ireland, but we also offer assistance and support for those outside the UK, although there are some restrictions on those applications.
Did you know?
Did you know?
“The first diagnosis of mitochondrial disease was in 1962, but research into the disease only began to take place within the last 20 years.”
Did you know?
“Mitochondrial disease can cause symptoms in any organ at any age.”
Did you know?
“Many diseases stem from mitochondria dysfunction, including Alzheimers, Parkinson’s, diabetes and autism.”
Mitochondrial disease and the Charlie Gard Foundation
Ways we can support you
Memory Making
• Respite Holidays
• Family Days Out
• Family Photo Shoots
• Wish Making
• Hand Casting Kits
• Bespoke Personalised Gifts
• Personalised Family Prints
Quality of Life
• Specialist Medical Equipment not readily available on the NHS
• Home Adaptations
• Essential Household Items
• Garden Renovations
• Specialist Wheelchairs
• Specialist Furniture
• Treatment Grants
Fundraising Support
For larger more expensive items and services (generally over £5,000) we offer fundraising support to reach targets for items such as hydrotherapy pools and specialist equipment, contributing a percentage to the overall cost.
Additional Services
• Bereavement Support
• Financial Advice
• Benefits Advice
• End-of-life Care Support
• Medical Information
• Emergency Support
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