Charlie’s Gifting Week
September 26th – October 2nd 2020 sees the return of our annual gifting week in Charlie's memory. Throughout this week we offer families...
Mitochondrial Disease Awareness Week
Awareness around the world for mitochondrial disease was spread from September 13-19th 2020 with a variety of social media campaigns, culminating in Light...
From heartache to miracle
Rags Martel has been a supporter for Charlie's cause from the start, so it was wonderful to be able to share the 'heartache...
Our new baby Ollie has ‘lit up...
Connie and Chris were delighted to be invited on This Morning to chat to Phillip and Holly about some fantastically positive news: their...
Now we can smile again… and mean...
After the heartache of her baby son's death, Charlie Gard's mother is full of joy for her newborn boy By VANESSA ALLEN FOR THE...
Ten-prize raffle now live
To celebrate our shiny new website, we've launched a shiny new raffle! We have ten amazing prizes up for grabs: 💙 Lay-Z-Spa Miami...
We’re in with the chance of winning...
A.F. Blakemore & sons have launched their community cash back grants, and we've made the final three for this week and we will...
Thank you to BGL Group for a...
BGL Group recently launched a wonderful initiative called Empower, Pledge, Donate and we are absolutely delighted to confirm we have been awarded a...
Our charity car has arrived!
We are delighted to announce that we finally have our brand new charity car! Fully illustrated with our amazing mito monkeys! This is...
Would you like to be involved with...
As we look for new ways to help raise vital awareness and funds for mitochondrial diseases, we would like to invite people affected...
Watching Coronation Street cover my children’s disease...
Picking up the phone, I dialled the number of a woman I’d found on the internet. I was desperate for some sort of...
From Harry Potter to Ed Sheeran –...
During the current lockdown due to Covid-19, many of our events have been cancelled so we’ve been looking for a variety of ways...
London Marathon Relay Raises Spirits and Funds
Sunday 26th April should have been the 40th London Marathon, but due to the unfortunate global pandemic the race was postponed. We thought...
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